Paul has an appointment coming up on Tuesday down in Boston. He will probably be getting more vaccines during this visit. Coming very soon will be September 27th - one year since Paul's transplant! That is an exciting milestone for sure!
Vinnie is still hanging in there - although he is getting awfully confused about things. He won't remember his diagnosis or tests he has had. He is forgetting peoples names and if someone was visiting him in the morning - by the afternoon he will forget that it happened. He is rapidly losing weight. At the most he might be getting in 300-400 calories per day. He gets nauseous sometimes , but mostly he just can't get it doen he says. He sticks with applesauce, ice cream, and jello. I have tried getting him to drink protein/calorie shakes but he just won't. I know this is part of his disease and the path he will follow - but it is still hard to see him so emaciated. Thankfully he still isn't experiencing much pain.
Alayna's best friend Annelina is having her 3rd birthday party next weekend and it is going to be a princess party. So I decided to try my hand at making a tutu for the occasion! I have been whipping up several of them with the tulle I had on hand. I am anxiously waiting my order of more tulle!
This week we have also seen a nice drop in the temperature. We are all loving the change of season's. Hope you all have a fantastic week!
1 comment:
We're so glad Paul is doing well! Not happy to hear Uncle Vinnie isn't doing well...he's in our prayers everyday! And Alayna is just getting cuter with every picture we see! So glad you like school! We miss you guys! XOXO
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