Paul and I made it down to Boston today to meet with different members of the transplant team. We first met with Pat who was very nice and put both of us at ease. Her job was to take us step by step from the radiation to the transplant and beyond. She really did her best to not dwell on any negatives but still convey that this will be a difficult year to go through. But then we will be over it and can look back on it. We were able to ask her any questions we had about anything. She also gave us a very large 3 inch notebook with information for us to go through, mostly aftercare. She also let us know that Paul's donor is a 27 year old male and is a perfect match. There are 12 things they look for and Paul and his donor are 12 for 12. There still may be some GvHD (Graft versus Host Disease) but she said that some is actually good. It shows them the new marrow is trying to settle in and also kill any microscopic Leukemic cells that could still be there.
Paul will go to the hospital on September 4th and start the first of 2 days of cranial radiation. Then full body irradiation will follow. The first day of the rest of his life with his new bone marrow is on September 11th. It will be a simple infusion that will enter through his Hickman line. They will be inserting that during his first day there. He is expected to stay in the hospital for 4-5 weeks. We hope he can can home for Alayna's 2nd birthday on October 10th.
Thank you to everyone for continued prayers - we need every one we can get.
Tuesday, August 26, 2008
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1 comment:
Wow...I am so glad they are doing a good job of keeping you informed! Those prayers are going up full speed!!! Don't you worry about that!
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